Welcome to Gina Moorhead's Hydrocephalus Association Walk Page
Join me as I support my daughter Gemma and WALK to End Hydrocephalus!
Born at 28-weeks, Gemma was born very tiny and very sick, and as a result suffered a grade 3/4 bilateral brain bleed. This brain injury ultimately led to the condition known as hydrocephalus, for which there is NO cure and something she will have to deal with her entire life. I still vividly remember the moment that the Johns Hopkins NICU doctors huddled us around our tiny new baby in her isolette and informed us that our beautiful little girl had suffered this tremendous injury and would deal with unknown developmental obstacles her entire life. In this moment, we were dealt a whole new way of life and parenting as we knew it.
To date, Gemma has undergone NINE brain surgeries — all because of hydrocephalus and the faulty nature of the devices that manage this condition.
Hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebral spinal fluid, resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which has a 50% failure rate in children within the first two years. A shunt is not a cure as many patients endure multiple brain surgeries throughout their lifetime, some more than 100. Imagine life knowing that the next brain surgery lurks around the corner because your shunt could fail at any moment.
As a parent, I live in constant fear that at any moment's notice we will need to head to our local ER or call an ambulance because of a sudden shunt failure. And as Gemma grows up and comes to understand her condition, this fear will eventually become her own. No one should have to live like this. This is WHY WE WALK and also why we would love your support.
Please donate and help me reach my goal. Your donation is greatly appreciated and will go far in helping us find a cure and improving the lives of people living with hydrocephalus.
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