Welcome to Our Team Page!
Hayden was born extremely premature at 26 weeks weighing in at 1 lb 4ozs. As a result of his prematurity he has had to face many challenges, one of those was suffering a grade 3 & 4 brain bleed resulting in Hydrocephalus. He lives with a medical device called a shunt, which is inserted into his brain to control the condition - a shunt is not a cure. Shunts often fail, become clogged, and subsequently need to be replaced. Shunts in children have a failure rate of 50% in the first two years after placement! Shunt insertion and replacement requires brain surgery, and often, multiple brain surgeries during a patient's lifetime. Hayden has endured TWELVE brain surgeries to replace his shunt because of this condition, his most recent revision July 2, 2019. One week after his twelfth revision on July 19, 2019, Hayden under went Bilateral Subtemporial Decompression (Crainectomy) to relieve the pressure that was still building up in his brain despite having a working shunt. At just 5 1/1 yrs old this is unacceptable and much more needs to be done to help families living with hydrocephalus.
Please join our team and WALK with us to End Hydrocephalus! This event is very dear to our hearts as we are walking on behalf of our loved ones who are living with hydrocephalus and the constant fear that their shunt could fail at any moment. As you may know, hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebral spinal fluid, resulting in pressure on the brain. The most common treatment for this condition is brain surgery to implant a medical device called a shunt, which has a 50% failure rate in children within the first two years. A shunt is not a cure as its consistent failures lead to multiple brain surgeries over a patient’s lifetime, in some cases 100 or more. This is unacceptable and this is WHY WE WALK. Please join our team, donate and help us reach our goal. Your donation is greatly appreciated and will go far in helping us find a cure and improve the lives of people living with hydrocephalus.